Wednesday, June 10, 2009

The final countdown!

It's the final countdown!!!! Only 9 more sessions to go!!

This is my 4th week of radiation and this past week I have been blessed with some great celebrations. It started off with a wonderful birthday/anniversary celebration with friends that reminded us how great love and life is. This past weekend we also celebrated my dad and his brothers birthday with a home BBQ and then to top it all off Jeff's BBQ cancerbration and b-day! It was a week of celebrating life, family and friends.

In the mix here I still had my radiation everyday and my first follow up with my oncologist. Not too much was discussed during the appointment, it was just to see how things were going and to examine me. Dr. Alam stated that she didn't want to discuss anything further until I was completely done treatments which meant until I was done radiation.... then she wanted me to stay as far away from the hospital as possible and she would see me back at the end of August to discuss what was going to happen next. So..... my next appointment will be discussing my follow up treatment plan which she said would be more than usual due to my age and situation as well as reconstruction. As much as I wanted to know what the next step was going to be I am going to have to accept the fact that I won't know and just chill, relax, and recover over these next two months.

Even though radiation is much easier than chemo it is a different kind of fatigue and tiredness you experience. At the beginning of chemo the fatigue lasted normally a week and then your energy levels would rise. The fatigue did get progressively got worse as treatments went on. With radiation, once you get the fatigue it doesn't go away because you are receiving treatments everyday. I am holding up though and just trying to rest more and slowly start some exercise again in hopes of it bringing my energy levels back up. My skin is also reacting to the radiation and burning.... I am hoping that it holds up for the next two weeks and doesn't get to irritated.

Till next time!

~sasha

Monday, June 1, 2009

Withdrawal

I haven't wrote in a week only because there is not too much you can really say to make radiation sound fun since you are doing the same thing everyday!

The radiation techs are getting faster with setting me up and administering the treatments, I think they have it down to ~ 10mins now. There are a couple of side effects starting nothing that is bothersome, such as fatigue.... I just rest more and sleep in longer and.... my skin is starting to show signs of a burn from my collar bone down half way of my torso... so a square section of my torso looks like a lobster. I was mistaken that I was supposed to meet with Dr. Schneider every Monday and I found out today it is only if you have any concerns or questions which I don't have so.... not sure when I will meet with him again, at the end of treatments?

Something I found on a cancer website that I need to ask my oncologist about this Thursday is if there is a such thing as post-chemotherapy rheumatism because these past few days I have been experiencing to me what would be arthritis pain in my feet, hands/wrists, and hips. The website explained that this is part of a withdrawal from certain types of chemo and the corticosteroids (both of which I was on). It also explained that the onset was 1-3 months post treatment and I am coming up on the 6 week mark this week. I will find out more information on Thursday!

Another exciting thing is this morning before treatments I went to HDGH to have my stitch removed from my port and all looks good, the scare healed well! Another part of the journey over and done with :)

Well, the end of this week will be my half way point of radiation....almost there!

~sasha